Fragmented documentation across emergency medical services, emergency departments, and outpatient care hinders the analysis of patient pathways. This work presents a data space that enables the creation of process-mining-ready event logs from heterogeneous routine data used within the TRANSPARENT study to analyze patient pathways in Germany. Using a Design Science Research approach, the data space was developed to link primary care, prehospital, and emergency department data from the national AKTIN infrastructure through local pseudonymization, a trusted third party for record linkage, and a trusted research environment. Governance follows national and European privacy regulations. The infrastructure represents the first framework of its kind in Germany for accessing comprehensive, cross-sectoral data from urgent and emergency care.
- Bienzeisler, J.
- Heidemeyer, H.
- Roehrig, R.
- Kombeiz, A.
- Alhaskir, M.
- Hertwig, M.
- Unterkofler, J.
- Brokmann, J.
- Otto, R.
- Panagiotidis, D.
- Beyel, H. H.
- Pegoraro, M.
- Peeva, V.
- Schwanen, C. T.
- van der Aalst, W. M. P.
- Zoch-Lesniak, B.
- Wittmar, R.
- Majeed, R. W.
- Transparent,
- Aktin Research Group
Keywords
- Germany
- *Emergency Medical Services/organization & administration
- *Electronic Health Records/organization & administration
- Humans
- *Medical Record Linkage/methods
- *Emergency Service, Hospital/organization & administration
- *Data Mining/methods
- *Ambulatory Care
- Data Space
- Ehr
- Emergency Department
- Process Mining
- Research Infrastructure
